We invite you to participate in a survey about your experiences receiving cancer screening for Li-Fraumeni Syndrome (LFS), and your thoughts about an upcoming clinical trial for people with LFS.Liquid biopsy is a promising new cancer screening technique that can detect signs of cancer in a blood sample, and researchers are planning a study adding liquid biopsy screening to the other cancer screening procedures for people with LFS.
This survey is research and will help us to understand your interest in this study and to plan a clinical trial that will work best for people with LFS and their families.
You are eligible for this study if you:
1) have a diagnosis of LFS,
2) are the parent or caregiver of a child with LFS.
Adolescents over the age of 12 years are also eligible to participate in this survey, with their parents’ permission. It will take approximately 20 minutes to complete.
We hope you will consider participating!
If you are interested, please visit https://redcap.link/LFS_LiquidBiospy_Study or scan the QR code in the attached flyer.
Principal Investigator: Suzanne MacFarland, MD
Children’s Hospital of Philadelphia
