Another invitation to participate in a study about the risk-reducing mastectomy decision making process for adolescents and young adults with Li-Fraumeni Syndrome:
A team of researchers at the Icahn School of Medicine at Mount Sinai are conducting a study to understand the factors that are most important to adolescents and young adults with Li-Fraumeni Syndrome when making their decision about whether or not to pursue a risk-reducing mastectomy. Participating in this study involves completing an anonymous online survey that will take about 15 minutes to complete.
You are eligible to participate in this survey if you:
- Were assigned female at birth
- Have been diagnosed with Li-Fraumeni Syndrome
- Are between the ages of 18 and 39 years old
- Receive the majority of your medical care in the United States or Canada
To learn more about the study or take the survey, click on the link below.
Survey Link: https://redcap.link/67d6a38o
If you have any questions about the study, you can contact Katie Galasso at kathryn.galasso@icahn.mssm.edu . The Icahn School of Medicine at Mount Sinai IRB has deemed this study exempt (Study ID #24-00639).
