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LFS Association

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So far LFS Association has created 39 blog entries.

Shirley

I discovered Li-Fraumeni syndrome one week before quadrant surgery for breast cancer. I found out about the cancer in April 2023, underwent chemotherapy, and reduced it to the point where only the quadrant would be removed. However, after genetic testing, everything changed. Today, I'm undergoing immunotherapy, and I believe it will continue until October. I

By |2024-07-11T15:16:32-04:00May 16th, 2024|LFS Family Stories|0 Comments

A Fatal Inheritance – How a Family Misfortune Revealed a Deadly Medical Mystery

Larry Ingrassia’s, A Fatal Inheritance, is the most comprehensive biography of Li-Fraumeni syndrome for the lay reader to date. Though this book reads like a riveting medical mystery, it is also an informative resource for medical students and providers, genetic counselors, and families riddled with early onset, rare, and/or multiple cancers, and even the skeptics

By |2024-07-11T15:16:33-04:00May 8th, 2024|Books, LFS News|0 Comments

Genetic Counselor Recommendations for Cancer Predisposition Evaluation and Surveillance in the Pediatric Oncology Patient

Published by AACR in 2017, this publication was written by some of the invaluable members of LFSA's Genetic Counseling Advisory Group.   In this article, the authors present a genetic counseling framework for oncology professionals. They discuss key points of entry and offer recommendations on when and how to provide initial and follow-up genetic counseling

By |2025-03-13T16:17:06-04:00July 2nd, 2017|LFS News, Papers & Research Literature|0 Comments

Li-Fraumeni syndrome: report of a clinical research workshop and creation of a research consortium (and the LFS Association)

On November 2, 2010, the National Cancer Institute convened a workshop at the National Institutes of Health in Bethesda, Maryland, bringing together clinicians and scientists, as well as individuals from families with LFS, to review the state of the science, address clinical management issues, stimulate collaborative research, and engage the LFS family community. This workshop

By |2025-02-20T15:39:39-05:00October 20th, 2012|LFS News, Papers & Research Literature, Reference|0 Comments

Monograph on Li-Fraumeni Syndrome

Monograph on Li-Fraumeni syndrome written by Dr. David Malkin and edited by Arnold Levine:  In 1969, Li and Fraumeni described a notable cancer predisposition syndrome. Using a classic epidemiological approach, they conducted a retrospective review of 280 medical charts and 418 death certificates of children diagnosed with rhabdomyosarcoma in the U.S. between 1960 and 1964.

By |2025-03-12T16:11:46-04:00April 2nd, 2011|Papers & Research Literature, Reference|0 Comments
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