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LFS Association

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So far LFS Association has created 27 blog entries.

Shirley

I discovered Li-Fraumeni syndrome one week before quadrant surgery for breast cancer. I found out about the cancer in April 2023, underwent chemotherapy, and reduced it to the point where only the quadrant would be removed. However, after genetic testing, everything changed. Today, I'm undergoing immunotherapy, and I believe it will continue until October. I

By |2024-07-11T15:16:32-04:00May 16th, 2024|LFS Family Stories|0 Comments

A Fatal Inheritance – How a Family Misfortune Revealed a Deadly Medical Mystery

Larry Ingrassia’s, A Fatal Inheritance, is the most comprehensive biography of Li-Fraumeni syndrome for the lay reader to date. Though this book reads like a riveting medical mystery, it is also an informative resource for medical students and providers, genetic counselors, and families riddled with early onset, rare, and/or multiple cancers, and even the skeptics

By |2024-07-11T15:16:33-04:00May 8th, 2024|Books, LFS News|0 Comments
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