On November 2, 2010, the National Cancer Institute convened a workshop at the National Institutes of Health in Bethesda, Maryland, bringing together clinicians and scientists, as well as individuals from families with LFS, to review the state of the science, address clinical management issues, stimulate collaborative research, and engage the LFS family community. This workshop led to the creation of the Li-Fraumeni Exploration (LiFE) Research Consortium and the Li-Fraumeni Syndrome Association (LFS Association / LFSA), led by a handful of LFS patients and family volunteers.
