LFS Awareness Brochures
PDF Downloads
English version only. Comes in packets of 50 brochures.
LFS Youth & Young Adult Brochures
LFS Awareness Brochure for Teens, designed especially for our teens and young adults.
PDF Downloads
English version only. Comes in packets of 25 brochures.
LFS Fact Sheet
A guide to what is LFS, the importance of genetic testing and the impact on public health.
LFS Fact Sheet
for Medical Providers
In conjunction with our esteemed Medical Advisory Board, the GCAG developed this quick fact sheet for your healthcare team(s)
Resource for
Mental Health Providers
Printable Quick Reference Resource for Mental Health Providers delineating challenges that families with LFS face.
Genetic Testing
for LFS Fact Sheet
Awareness sheet highlighting the importance of how genetic testing can save lives for LFS and inherited cancers.
“Living My Best”
Children’s Guide
An LFS resource for children aged 8 -13. Review the booklet and decide if it’s the right time to share with your child.
Insurance Appeal Letters For Care Providers
Download the Pediatric Appeal Letter Template
Download the Adult Appeal Letter Template
Additional Insurance Resources
Download the Insurance Basics for Individuals with Li-Fraumeni Syndrome (LFS) PDF
Reference
- NCI Fact Sheet: Cancer in Children and Adolescents (May 2014)
- NCI Patient Education: Pain Control – Support for People with Cancer (May 2014)
- NCI Li-Fraumeni Syndrome Study list of publications
- NCI Fact Sheet: Cancer Staging (January 2015)
- NCI Cancer Topics: Coping with Cancer (December 2015)
- Cancer.Net: Li-Fraumeni Syndrome (November 2014)
- NCI Patient Education Publications (October 2014)
- NCI Fact Sheet: Targeted Cancer Therapies (April 2013)
- MD Anderson Cancer Center’s Patient Education handout: Li-Fraumeni Syndrome (April 2014)
- NCI Fact Sheet: Genetic Testing for Hereditary Cancer Syndromes (April 2013)
- NCBI GeneReview: Li-Fraumeni Syndrome (Schneider, Zelley, Nichols, & Garber, April 2013)
- The birth of the LiFE Consortium and the roots of the LFS Association – Li-Fraumeni Syndrome: report of clinical research workshop and creation of a research consortium (August 2012)
- NCBI Bookshelf: Li-Fraumeni Syndrome (Malkin, April 2011)
Cancers reported in LFS families. Click on the cancer type to reach the National Cancer Institute’s patient education library:
Carcinomas (cancers that originate in a tissue that lines the inner or outer surfaces of the body, also known as epithelial cells)
- breast cancer
- neuroblastoma
- adrenocortical carcinoma
- lung cancer (to include rare form – Bronchioloalveolar lung cancer)
- thyroid cancer
- pancreatic cancer
- endometrial
- ovarian
- prostate
- renal cell carcinoma
- gonadal germ cell tumors (sex organs)
- stomach or gastric cancer
- esophageal cancer
- colon cancer
Sarcomas (cancers that arises from transformed cells of mesenchymal origins)
- childhood rhabdomysarcoma (muscle tissue)
- osteosarcoma (bone cancer)
- adult soft tissue sarcoma
- other childhood soft tissue sarcomas (includes myofibroblastic tumors)
- brain tumors
- childhood brain tumors
- adult brain tumors
- glioblastoma
Leukemias (originate from bone marrow) and Lymphomas (originate in the lymphatic tissues)
- adult acute lymphoblastic leukemia
- adult Hodgkin lymphoma
- childhood Hodgkin lymphoma
- adult non-Hodgkin lymphoma
- childhood non-Hodgkin lymphoma
Skin cancers
- melanoma
- non-melanoma (general skin cancer)
